In some ways, the world is getting kinder

As I was writing this essay, I got a call from a blind man named Henry. He needed help finding the front door of his apartment, and then help making his way through the somewhat maze-like halls of his building, around several corners, through several sets of doors, down a ramp, and into the lobby where the stairs were.

He walked holding his phone, and I guided him based on what I could see on the live video. At one point, it was too dark for me to see where he was going, so with his permission, I tapped my screen to remotely turn on his phone’s flashlight, lighting his way. When he got to the lobby, he thanked me, we wished each other a good day, and we hung up. Simple as that.

The call came through an app called ‘Be My Eyes’, and it works wonderfully well. It connects blind and visually impaired people with randomly-chosen volunteers who can help them out in various ways. At last count, there are 431,970 blind people using the service, and nearly six million volunteers. Someone always answers.

If you want evidence that the world is getting meaner, you don’t have to look far. I won’t even supply examples, because I’m sure several sprang to mind. Entire careers and industries are dedicated to keeping supplies of human cruelty fresh and constant, and to making sure we all think about it all the time.

But there is also evidence that the world is getting kinder. The ‘Be My Eyes’ app is just one. Despite how it may feel some days, we’re not all engaged in some inexorable downward slide into Gehenna. There are countless happy warriors everywhere, waging tiny battles to retain their humanity day by day, and to find ways to be kind to each other.

Here are some I’ve noticed recently, when I decided to look:

Many libraries no longer charge late fees. I’m sure they were partially forced into this decision, because people were simply not returning books, and then never going to the library again; but the general impulse — “all is forgiven, just return to me” — is a wonderful one, very much in keeping with the Gospel. Good stuff.

Several video games now have what could be called “little buddy mode” — a setting or character designed for a younger, less competent companion player who tags along with a more skilled gamer. They can feel like they’re part of the action, but they aren’t at risk (or else they can regenerate endlessly), so it’s harmless fun for them to join in. (Super Mario’s Nabbit, Kirby’s Epic Yarn, Yarn Yoshi, and Mario 3D World are some examples of some variety of this feature.)

To be sure, this isn’t altruism. It’s a product made because the company thought it could sell something. But it’s a beguiling idea, and caters to a wholesome and friendly consumer need, rather than a cruel and low one, which is something you don’t see very often.

More and more parking lots have reserved parking spots not only for disabled customers, but for pregnant women and for parents with babies. One of the greatest baby gifts someone ever gave me was a reserved parking spot in the last month of my sciatica-ridden pregnancy, saving me a short but very painful walk to and from the school door five days a week. Again, partially consumer-driven, but kind and merciful all the same for the grateful woman who really needs that spot.

The proliferation of GoFundMe’s, meal trains, money pools, Amazon wish lists for strangers, and other easily-sharable means of supporting people in need. Yes, sometimes they are foolish, and sometimes they are scams, but very often they literally save lives, and people in crisis are rescued with their dignity intact. This is something that simply didn’t exist 15 years ago, and it’s very good that we have it. It just about redeems the internet, and it’s good that people with only a little money to donate are given the chance to join in on a good deed.

‘Buy nothing’ groups have also proliferated on the internet. This is a resurrection of a practice from another age, when people would “wear it ’til you wear it out; make it do or do without.” Now, pushing back against the tsunami of discarded consumer goods, there are myriad groups where people can list what they no longer want, and I have rarely seen anything go unclaimed.

The other day someone said she had several spaghetti sauce jars without lids, and I rolled my eyes, thinking no one would want her excess recycling. Within minutes, another woman happily claimed them, saying she was selling cut flowers at the farmer’s market and needed more jars for vases.

I have also seen people request furniture, clothing, and all manner of things for their families, and someone always something to share. People want to share; it was just the mechanism for doing it easily that was lacking.

Any time we need to fix something around the house, or make a car repair, or even make a costume or a party prop, we head to YouTube, and there is almost always a useful instructive video.

Sometimes they are slick, monetized videos that someone produced as a business, but very often, they are just little movies that people have made because they know how to do something, and they would like to help other people out. There is no money or fame involved; they’re simply being helpful. This is purely lovely.

Little free libraries, and little free food pantries, and other little free structures have been erected all over the landscape, just so people can share what they have with each other. These little free-standing miniature sheds started popping up a few years ago and people have not gotten tired of them yet. It’s easy to see why.

There’s no paperwork, no income requirements, no humiliating process where you have to display your poverty before some beneficent committee. If there’s something you want, you simply take it. If you have something to give, you simply leave it. Simple and kind.

The concerns of children are taken more seriously than they were even a generation ago. Some of this is legislated, with child labor laws and efforts to abolish statute of limitation laws regarding abuse; but some of it has just made its way into the social order.

You don’t have to “but abortion” me. I know that there is immense cruelty and hardheartedness toward unborn children at the same time. That doesn’t negate the good that is happening, and it’s truly good that adults today are much more likely to listen to a child who says they are being bullied, or who says they are feeling anxious or afraid or overwhelmed, or who says something bad is happening to them.

In general, we treat children more like full humans, and this is a very good thing.

There’s a real trend away from remarking on people’s appearances. I was skeptical at first, and thought that this trend was merely lip service that people would be trained to do so as to appear correct; but my younger kids seem truly acclimated to the idea that it simply isn’t normal or acceptable to judge someone based on how they look.

It will be fascinating to see how far this trend goes, and how it affects people’s actual behavior toward each other, but even if it only reaches so far, it’s been pleasant to see that it’s no longer socially acceptable, for example, for a man to dismiss a female colleague simply because she isn’t attractive to him. Guys still behave like this, of course, but at least in many quarters, there is now always pushback. When I was growing up, no one would have batted an eye. There really is change afoot.

It’s become more and more common for businesses and schools to offer free menstrual products in their bathrooms, along with other hygienic necessities like toilet paper and soap. Since about half the population menstruates, and these products can be prohibitively expensive, it’s wonderful to see more corporations acknowledging a responsibility to provide these goods so women and girls can show up and function at full capacity.

There is more and more integration of adaptive equipment in public places for people with disabilities. More playgrounds have adaptive swings and other play structures; more churches offer sensory-friendly services and more gyms and entertainment centers offer sensory-friendly evenings; more crosswalks have auditory aids; more museums have adaptive displays for the impaired; more supermarkets have adaptive carts.

These accommodations are not only great so people with disabilities and their families can live their lives, it’s good for the rest of the world to constantly recognize that people with disabilities are fully part of the community, and that their needs are different but just as legitimate as the needs of abled people.

And there is more. I’m sure you can think of examples, if you look. These things have a way of building on each other. If you see that the world is kind and kindness seems normal, then it’s easier to start contributing yourself.

What can you add to this list?

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A version of this essay was originally published in The Catholic Weekly on October 5, 2022.

Photo by Greg Dunlap via Flickr (Creative Commons)

When you sit behind that special needs family at church, here’s what you should know

For many parents of kids with special needs, it’s hard to be at Mass. Just being there is hard. It is the one place they ought to be welcome and feel at home, but instead, it’s often stressful and exhausting, and they feel judged and misunderstood, burdensome, or just plain forgotten. 

Some of that has to do with how adaptive the parish has become. Many parishes have made good accommodations, offering ramps and ADA compliant doors, several pews with lots of space for wheelchairs and for caregivers, and even changing tables designed for heavier kids, not just babies. Some parishes offer adaptive religious education and other activities that attempt to include kids with different abilities; and some priests are ready and willing to provide the sacraments to Catholics who can’t express themselves in typical ways. 

When a parish pulls together and offers these accommodations, a special needs family knows they are truly welcome, and it’s a beautiful thing.

But the other thing that really makes a difference is how other people behave in the pew.

When a special needs family shows up every week, how are they received? Sometimes people who don’t have experience with special needs don’t mean to be hurtful; they simply don’t know better. Here are some things special needs parents wish their fellow laymen understood. 

A kid with special needs may may moan, growl, gesticulate, or sing wildly off pitch. He may shout “JESUS!” when he sees Jesus. Fellow Catholics should try not to stare, scowl, or sigh. A pro-life parish welcomes individuals even when their special needs aren’t cute or photogenic, and special needs Catholics are entitled to participate in the Mass according to their abilities. 

People with special needs may need more time getting in and out of pews. Please be patient. If not when we’re in the presence of God, then when? 

The kid who’s fiddling with a toy, wearing a peculiar hat, or dressed in casual or seemingly inappropriate clothing may truly need to do so in order to be there. What looks like irreverence may be what’s allowing them to make it through Mass. And sometimes phones, handheld devices, or juice boxes are true medical devices, and may be saving a child’s life.

Some kids cannot sit still. They are literally physically incapable of it.  This is how God made them, and they should not be banished to the cry room or the foyer every week for their entire lives because of that.

Disabilities and special needs are not always visible or obvious. A child who looks “fine” may have completely invisible struggles, and just getting to Mass every week may have been a huge effort for the family. Things that come easily to typical families may be monumental trials for families with special needs, and their parents are very aware that their kids are being judged as undisciplined “brats.” Fellow Catholics should strive to provide a place where this kind of judgement doesn’t happen.

People with special needs don’t always look their age. Others should simply assume that their parents are dealing with them in an appropriate way, and leave it at that.

If you’re stopping to chat, go ahead and chat with people with special needs, too, or at least smile at them. Even if they have some intellectual disability, they still have human dignity and deserve to be greeted and acknowledged like anyone else. Even people with profound disabilities can have their feelings hurt (and their parents definitely can), so it’s also important to be careful what is said in their hearing.

People with special needs are individuals with dignity, and their possessions are private property. Resist the urge to move them or their wheelchairs or devices without permission. If you need to touch something that belongs to them, always ask first, just as you would with any kind of personal property.

Parents have tried the obvious solutions to their struggles. They are experts, and even if you mean well, they don’t need to hear a suggestion that just popped into your head. Even if you happen to know someone else with that same condition, your understanding is not going to be comprehensive, so it’s not a good idea to belly up to a special needs parent and act like an expert when you’re not living their life.

Families vary, but in general, they probably do not want to be pitied, they probably do not want to be lavished with praise as saints or heroes, and they probably don’t want to hear anyone’s reassurances that God will heal their children. If you see a special needs parent struggling, you can always ask if they need a hand — but don’t be offended if they decline. And you can’t go wrong by offering a sincere word of encouragement, like, “You’re such a good parent” or “You’re doing such a good job” or “I love seeing your family here.” 

Most likely, special needs kids and their parents simply want to feel like they belong, just the same as any other Catholic who takes it for granted that there is a place for them in the pew.

 

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For more information, resources, and community for Catholic special needs parents, visit acceptingthegift.org, an apostolate founded by Kelly Mantoan
Many thanks to all the parents who contributed ideas to this essay. 

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A version of this essay was originally published in Parable Magazine in November of 2021. Reprinted with permission.

Image: Wheelchair ramp up to the cathedral entrance, Coventry – start of the handrail
cc-by-sa/2.0 – © Robin Stott – geograph.org.uk/p/5028944

 

Prolife spotlight: St. Joseph’s House and Isaiah’s Promise offer support, respite, and joy to families of the disabled

Cubby LaHood used the term “D-day” for the day parents first hear their unborn child has a severe or fatal birth defect.  

“The baby is the same baby they conceived and were joyful about, but … the baby can become a stranger,” she said in a 2013 40 Days for Life address.

LaHood, who died in 2015, suffered the same crushing shock herself, when her baby Francis got a likely fatal prenatal diagnosis. Everyone offered the couple abortion — doctors, clergy, family, and friends. But she and her husband Dan decided that they would love and carry their son Francis as long as he lived.

 
The LaHoods firmly believed unborn children with severe or fatal diagnoses deserve to live. But they also came to understand that carrying such children to term, rather than resorting to abortion, can bring healing, strength, and even joy to the parents and family, and even to the rest of the community, whether the child dies before he is born, or if he goes on to live for several years. 
 
“Hope led to grace, grace led to faith, and faith led to peace,” she said. 
 
Cubby and Dan LaHood went on to found two organizations based in Maryland, to offer encouragement, resources, and tangible support to people with disabilities and their families. Isaiah’s House, founded in 1995, offers personal support for families carrying to term after a severe or fatal prenatal diagnosis.
 
“In seemingly the most hopeless and difficult of circumstances surrounding the birth of a child, a simple ‘yes’ to life reveals the presence of God, and the presence of love,” she said in a video called “Destined to Live Forever.”  
 
They believe that even a very short life has meaning and power. “[These parents] conceived a miracle, and that miracle deserves all the support that you can give it. It’s about more than you,” LaHood said. 
 
Pro-lifers are frequently accused of being merely pro-birth, of counseling parents to reject abortion, but then abandoning them after the delivery. The LaHoods’ mission refutes this accusation. The other organization they founded, St. Joseph’s House, offers daycare, summer camp, and after-school programs, and respite programs for families of children with disabilities.
This effort, too, sprung out of a personal experience. When Cubby LaHood was pregnant with her first child, she wanted to stay at home, so she decided to open a daycare. The first client she found had a disability, and word quickly spread that LaHood was willing to care for disabled children. 
The family soon made it their mission to make a true home for these children, and to counter “the eugenic impulse” of the world that wants to reject anyone deemed imperfect or useless. St. Joseph’s House is now run by the LaHood’s daughter, Natalie. 
 
Cubby LaHood didn’t believe her family was special. “We all have the capacity to give love,” said LaHood. “It can be done without support — we did it without support — but there’s no reason for it to be done that way.”
 
 The LaHoods do not minimize or sentimentalize the difficulty of carrying and caring for a child with disabilities.
 

“Nobody wants to go through the Passion,” said Dan LaHood “No one wants to go through the Garden of Gethsemane. But once you go through it, you find there’s the spirit of God. There’s resurrection. Not only there’s life, but it’s eternal, and it’s more than you could ever imagine; and you can experience it now.”

None of the hundreds of couples they’ve walked with have regretted their choice, the LaHoods said. 

“Even in this worst, most darkened, most rejected place, God is. Love is.”

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Image from this video:

Destined to Live Forever from Lumen Catechetical Consultants on Vimeo.

St. Joseph’s House

​Saintjosephshouse1983@gmail.com

On Facebook: https://www.facebook.com/saintjosephshouse/

Isaiah’s Promise

info@isaiahspromise.net

On Facebook: https://www.facebook.com/IsaiahsPromise4915/

St. Joseph’s Place also runs Cafe St. Joe in , “part job skills training, part community builder, and part fundraiser.” The Cafe offers a specialty blend of coffee made by a roaster that employs adults with disabilities, and half the proceeds to go the cafe

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Previous volumes of Pro-life Spotlight:

We Dignify

Gadbois mission trip to Bulgarian orphanage

Mary’s Shelter in VA

China Little Flower

Immigrant Families Together

Rio Grande Valley Catholic Charities Humanitarian Respite Center

If you know or have worked with an organization that works to build a culture that cherishes human life, please drop me a line at simchafisher at gmail dot com with “pro-life spotlight” in the title.

Pro-life spotlight #1: China Little Flower

As I mentioned last week, I’ll be regularly featuring groups who do the work the president described in his SOTU speech: groups that “work together to build a culture that cherishes innocent life“and that “reaffirm a fundamental truth [that] — all children — born and unborn— are made in the holy image of God.”

One of my favorites for many years: China Little Flower. This charity started out with a couple who had met as exchange students in China. They started out simply helping a few orphaned babies, but soon realized there was a great need for a more organized effort. Because China’s culture and legal system is hostile toward children with disabilities, many families simply don’t have the money, the education, or the cultural support to raise a child with complex medical needs.

According to the BBC’s blog on disability:

The most widely used word for disability in Mandarin is canji, which literally means deficient/deformed and diseased.  … [M]any traditional, pejorative terms for disabled people are still in common currency: canfei (crippled and useless), yaba(mute), shazi (idiot) and xiazi (a derogatory term for blind people) can still be heard on the lips of many ordinary citizens of the People’s Republic.

The Chinese government may have relaxed its strict one-child policy, but the culture is not now more welcoming of disabled children. Instead, state propaganda encourages parents to produce healthy children for the good of the country. Women and girls and those considered “useless” are still treated as less than human. According to Leta Hong Fincher in a NYT opinion piece, when China relaxed its brutal one-child policy,

the government was only embarking on another grand experiment in population engineering: This time it was urging women — though only the right sort — to reproduce for China.

[…]

The government has unleashed in recent years a propaganda blitz on women it considers to be gao suzhi, or of “high quality.” “Make sure you don’t miss out on women’s best years for getting pregnant!” warn some headlines in state media. Those years supposedly are between the ages of 24 and 29, according to the government; beyond that, it says, beware birth defects.

Parents who are willing to raise their disabled kids have little cultural or financial support, and little education on how to care for them.

This important clarification from Kelly Mayfield, author of Mine In China: Your comprehensive guide to adopting from China:

“In many cases these parents have made a heartbreaking decision because they can’t afford the medical care the child needs. You can see some images of parents leaving their children at the Guangzhou baby hatch at this link. You have to have cash up front for heart surgery, cancer treatment, etc. There is no legal way to relinquish children in China, so they abandon them in hopes that the child will receive the necessary care when they’re in an orphanage or if they are adopted by another family. Some of the children are left with notes that say ‘Please don’t let my child die. We are poor and can’t afford the surgery.'”

China Little Flower’s mission:

Recognizing the beauty and dignity of each and every individual person, China Little Flower works to build a culture of life by reaching out to those who are rejected, abandoned, deemed as useless, and who have no voice. Whether by direct care, support, or education, we seek to show the value of each human life and build a culture that respects, protects, loves and serves life!

They provide hospice care for orphans, group educational foster care, special care for infants, and long-term care for severely disabled children.

Dew Drops will provide both a long term, enriching home environment for abandoned children, and also  a temporary home for families in need of support and specialized care, while they navigate the health care system. These families will benefit from financial, emotional and medical support in caring for their child during treatment, as well as ongoing support after they return home.  Our primary focus is on children born with complex heart defects.

Our Orphan Care Unit will provide specialized medical care as well as foster healthy emotional development for abandoned children:

  • Children ages 6 month to 5 years old born with complex congenital heart defects
    • Capacity of 30 beds
    • Every child will stay with us until (s)he is adopted
    • Employ full time ‘moms’ who are trained in trauma-informed care practices and who will provide continuous, 24 hour care. This helps abandoned children learn to form attachments and heal from the past trauma they have experienced.

In our Family Care Unit, in addition to specialized care, we also focus on educating families and advocating with them as they seek the best medical treatment for their child:

  • Children from disadvantaged families (targeting rural areas) born with complex heart defects
    • Capacity of up to 5 children/families at a time
    • Children will be accompanied by at least one parent/family member during their stay
You can make a one-time or recurring donation to support their work, and you can also support them through their donor-advised fund.
The founders, Brent and Serena Johnson, live in Beijing with their six children, and they donate their time and efforts to the organization. China Little Flower is a registered non-profit in the USA and received 501(c)(3) status in 2000. You can contact them at info@chinalittleflower.org or

China Little Flower
4388 Steinbeck Way
Ave Maria, FL 34142

Sign up for their monthly newsletter and follow them on Facebook, where they share photos of some the beautiful babies in their care.

chinalittleflower.org
littleflowerprojects.org
dewdropslittleflower.org

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If you know or have worked with an organization that works to build a culture that cherishes human life, please drop me a line at simchafisher at gmail dot com with “prolife spotlight” in the title.

I’m also looking for a name for this feature! Pro-life Spotlight is okay, but it could be better. Suggestions welcome.

WONDER is sappy and predictable. Take your kids anyway.

When the dog died, I said to myself, “They are gonna run out of trowels if they keep on laying it on this thick.”

It’s not really a spoiler to reveal that the family dog dies halfway through “Wonder.” There can be no true spoilers in “Wonder,” possibly the most predictable movie ever put to film.

But that’s okay. It doesn’t set out to be Chekov. “Wonder”has a simple, specific goal in mind: to remind children (and adults) that kindness matters; that people are not always what they seem; that we all need mercy sometimes; and that strength and goodness ripple outward. And it achieves that goal.

Read the rest of my latest for America Magazine.

Movie image: www.wonder.movie