Anti-vaccine talk cancelled at Catholic Church

A Catholic New Hampshire parish announced plans to sponsor an anti-vaccine speech, then abruptly cancelled it after protest from parish staff and other laymen.

Ste. Marie in Manchester, NH announced last week they’d be hosting a talk called “Vaccine Inflation” by Jenna Pedone, who describes herself as “a Registered Pharmacist for 20+ years with experience in retail pharmacy and pharmaceutical sales [who] has for over two years vigorously studied and reviewed vaccine science and ingredients as a concerned parent and healthcare professional.”

Pedone said she “studied under Dr. Sherry [sic] Tenpenny in her Mastering Vaccine Info course in 2018.”

Dr. Sherri Tenpenny is an osteopath who believes vaccines cause autism, food allergies, and speech impediments. She advocates a total refusal of vaccines and antibiotics. Tenpenny rejects germ theory and has no specialized training in infectious diseases, immunology or microbiology. When Gabrielle Giffords was shot, Tenpenny blamed vaccines.

The “Mastering Vaccine” course she offers, which consists of a series of online “modules,” explicitly promises to train participants to influence others in their churches to reject vaccines.

As a Catholic, I was alarmed to see the church sponsoring what was clearly going to be an anti-vaccine presentation marketed as information for “prolife Catholics.” The graphic Pedone provided for her speech shows pills marked with five-dollar bills.

Although vaccines are not administered in pill form, the image suggests that vaccines are promoted for financial reasons. I contacted Pedone for more information on the content of her speech. She told me:

I want to empower Catholics young and old to do their OWN research, trust their gut, believe in the immune system God have them. I was initially struck by something my pastor said about no boys being ordained this year in our diocese. It prompted me to email him sharing what I have researched about how vaccines are destroying our boys brains and how at the rate we are vaccinating, 1 in 2 boys will be autistic by 2030 so who will run our churches? Who will father our children and grandchildren? I want people to leave the talk feeling empowered that they don’t need a medical degree to learn about vaccines and health for their family and grandparents.

Pedone is apparently referring to a 2014 claim by a “senior research scientist at MIT” that half of all children will be autistic by 2025.

The scientist in question, Stephanie Seneff, is trained in computer science and has no training in epidemiology. She made her startling claims about autism based the assumption that correlation is causation, and that trends will always continue at the same rate.

But the rate of autism spectrum disorder diagnoses is not increasing. It has stabilized in recent years in the US, and most researchers believe that the apparent increase in autism in the past decade was due to improvements in diagnoses, and not to an increase in actual cases. In other words, it’s likely that more children do not have autism these days; we have simply become better at understanding what autism is and at recognizing it.

No study has ever established a causal connection between vaccines and autism. Countless studies have looked for and found no causal connection.

Moreover, boys with autism can and do grow up to father children and become priests.

Pedone said when she proposed making her speech at Ste. Marie, she did not speak to the pastor directly, but she had spoken to his secretary. Pedone said the secretary “was open to people seeing the information of which vaccines contain fetal DNA. People can learn and then make their own determination.”

No vaccines contain fetal DNA. Some vaccines are produced using cell lines derived from fetal tissue. Researchers have debunked reports suggesting that vaccines produced from fetal cell lines are “tainted.”

But even if these vaccines are safe, are they ethical, since they are derived from cell lines obtained through abortion? Pedone said that her speech would include “what to know as a prolife Catholic if you are going to follow the CDC recommended vaccine schedule.”

The Church has issued a statement about what pro-life Catholics need to know before they vaccinate:

The Church has asked us to protest against the practice of producing vaccines using cell lines derived from fetal tissue, to demand ethical vaccine production, and to ask for ethical alternatives if they are available; but the Pontifical Academy for Life has said it is ethical to use these vaccines. It says that doctors and parents who use vaccines produced unethically participate only in “a form of very remote mediate material cooperation” with the evil of abortion. Another example of remote mediate material cooperation is paying taxes as a citizen of a large country which may use some miniscule portion of that money to fund some unethical activity.

The National Catholic Bioethics Center says:

One is morally free to use the vaccine regardless of its historical association with abortion. The reason is that the risk to public health, if one chooses not to vaccinate, outweighs the legitimate concern about the origins of the vaccine. This is especially important for parents, who have a moral obligation to protect the life and health of their children and those around them.

[…]

There would seem to be no proper grounds for refusing immunization against dangerous contagious disease, for example, rubella, especially in light of the concern that we should all have for the health of our children, public health, and the common good.

After I talked to Pedone, I contacted Ste. Marie to ask for more information about the speech. On Wednesday, Fr. Moe Larochelle called me to say that the talk had been cancelled, and that the cancellation would be announced in the bulletin and at Mass.

He said that he did authorize the speech, but at the time, he was not aware of how much controversy surrounds vaccines.

“Jenna [Pedone] presented it as if she were just giving information, so people could decide for themselves,” he said.

Once he became aware that the topic was much more controversial than he realized, he decided to simply cancel the speech, since there wasn’t enough time to organize a speaker who could present an opposing point of view. He said the parish did not want to create the impression that they were promoting any particular point of view.

He said that, in the future, if someone proposes giving a presentation on the topic, especially since it involves bioethics, the parish will handle it as they would handle a political presentation. “Now that I know, before I do anything, I’ll call the diocese,” he said.

Tom Bebbington, Director of Communication for the Diocese of Manchester, said that the diocese does not routinely give pastors or parishes guidelines about what kind of talks or presentations can be sponsored by the parish.

Bebbington said “there is no process for those invited by pastors/parish staff to speak in parishes. The concern is that it would too much for us to handle, especially for seasonal missions in parishes (e.g., Lent).”

The number of unvaccinated children in the US has quadrupled since 2001, and recent outbreaks of chickenpox, pertussis, measles, Hib, and pneumococcal disease have been traced back to vaccine refusal. Non-medical exemptions for vaccines, including religious exemptions, are on the rise in many states.

Our pastors are responsible for keeping abreast of innumerable kinds of information, and they may need our help in understanding how fraught the topic of vaccines is, and how much dangerously flawed information, both medical and ethical, is being circulated about the topic.

The “Vaccine Inflation” talk at Ste. Marie’s was cancelled because staff at the church and a number of concerned parishioners understood how problematic the upcoming speech would be, and they were able to dissuade him from allowing it to appear that the Church sanctions the ideas the talk contained. All educated Catholics who understand the importance of vaccines, for individual health and for the safety of the community, should ready to do the same.

Just as Catholics have an obligation to push for the production of more ethical vaccines and the obligation to protect the vulnerable from preventable diseases, we have an obligation to be vigilant, guarding our local parishes from even the appearance of condoning pseudo-science and pseudo-ethics. We must be well informed about our medical and ethical responsibility surrounding vaccines, and we must be prepared to speak up when dangerously erroneous information makes its way into our communities, especially under the guise of pro-life concerns.

Charlie Gard will die. But is it murder?

Here, I will not discuss the question of parental vs. state authority in life-or-death decisions. I only want to talk about the life-or-death decisions themselves, and I want to challenge the brutally simplistic narrative that there are two sides: People who want to treat Charlie further, who are good, and people who want to withdraw Charlie’s life support, who are bad.

It’s not so simple.

Read the rest of my latest for The Catholic Weekly.

Photo: U.S. Air Force photo/Staff Sgt. Bennie J. Davis III

A sentimentally brutal response to the artificial womb

Remember the scene in Monsters, Inc. where all the various monsters are getting ready to be scary? They each have their own style: One is a blob with many eyes, one has retractable spikes; some are sneaky, some are creepy. And then there is the one who makes his point by flailing his orange tentacles around and rushing forward with a hysterical shriek.

This is the approach taken by a blogger for the Register a few days ago, in a post called “The Advent of the Artificial Womb: Suddenly, it’s a braver, newer world.”

The artificial womb is a long-awaited technological breakthrough which, it is hoped, will eventually allow very premature babies to continue gestating until they are stronger.

Currently, preemies must adapt prematurely to breathing air and receiving nutrition orally — an ordeal which sometimes saves lives, but still often leaves survivors with profound, lifelong disabilities. Rather than being intubated in an incubator, sedated and on a respirator, premature babies in an artificial womb would grow in a pouch filled with lab-made amniotic fluid, which would be gentler on their tiny bodies, and would allow their lungs and brains to develop more normally.

But this blogger calls the artificial womb a “travesty.” In nearly 3,000 words, he devotes only a few brief paragraphs to the idea that the invention, if successful, will keep premature babies alive, and he allows half a sentence for the idea that it’s a good thing to keep premature babies alive.

And the rest of his post is flailing tentacles, as he drags in everyone from Descartes to Dune to homeless schizophrenics to Simone de Beauvoir to Octomom, to the right to spank and homeschool, to (of course) the gays, and finally to – shudder – “feminists,” saying, “The artificial uterus is fraught with danger to the point of moral disaster on the par with abortion.”

He looks into his crystal ball and sees nothing but horrors:

Now that artificial uteri are to soon be a possibility, how many more made-to-order pedophile sex slaves are we to expect? How many of more will a liberal media refuse to shed a spotlight on?

Also, can a woman who has used an artificial womb truly bond with her child? Can the child develop normal feelings for the person who purchased its birth in a plastic Ziploc baggie?

Does he have a leg to stand on?

Well, it’s true that some folks will immediately scheme how to use this medical advance in ways that are harmful and contrary to human dignity — like incubating a child entirely and electively in an artificial environment, so that women no longer have to give birth, or so people can design and purchase a child to their specifications, with motives ranging from selfish to monstrous. I’m no fool: I know that there are people who desire these things. (It’s already being done, only we use poor Indian women rather than a plastic bag.)

But it’s also true, once artificial wombs are functional, that some of the tens of millions of babies born prematurely may live instead of die, and may be born closer to full term, with less trauma and more of a chance of avoiding life-long health problems. This is not nothing. This is not some negligible perk that we can easily decline for fear of potential abuse.

Artificial wombs are not intrinsically evil.  They may someday be used for evil, but so may every other medical advance you can name. The medical syringe, for example, was invented to inject painkillers; now it’s also used to heal the sick, to administer vaccines, and to save lives. Syringes are also used for delivering heroin, and consequently are responsible for the spread of HIV and hepatitis, which is transmissible to unborn children of the infected. Bad, bad stuff. Things that make the world undeniably worse.

But that doesn’t mean that syringes are a travesty on par with abortion. It means that human beings are prey to original sin, and will immediately set to work perverting the use of everything they can lay their hands on.

The outraged blogger fails to draw a vital distinction between two kind of scientific advances:

  1. Things that are morally neutral, and may be used well or misused, and so should be approached with caution, and
  2. Things that are intrinsically immoral, even if they may be used for good ends.

IVF and abortion fall into the second category. The artificial womb falls into the first category. But he seeks to blend the two categories, essentially arguing, “Just think how very wrong this could go!”

And what if God the Father had made this very persuasive argument when He made our first parents? Lots of potential for abuse there. Should He have scrapped the whole project?

There should always be special caution when we see medical advances related to the conception and gestation of humans. Because human life is sacred, it is especially heinous when it is treated as a commodity, as a means to an end, or even, God forbid, as a trinket.

Because human life is sacred, it is wrong to use technology to create a human life in a petri dish, even if the parents of the child love him. It is wrong to use technology to deliberately end human life through euthanasia, even if the patient is suffering.

And there are some murky areas about which, as far as I can tell, Catholic bioethicists have still not made a definitive pronouncement. For instance, it’s possible that a theoretical womb transplant might be moral or immoral, depending on the object, the end, and circumstances surrounding the procedure. It’s uncertain whether it’s ethical to “adopt” a frozen embryo which would otherwise be destroyed.

So I have some grudging sympathy for the blogger. Medical advances and human gestation make uneasy bedfellows, and modern folks are not especially particular about which bedfellows they choose. It’s no use pretending that there are no dangerous possibilities when medical technology makes another leap ahead. It’s no use pretending that everyone who might use new technology will be pure and noble. Horror are all around us, and technology is advancing faster and more recklessly than we can keep up with.

But nothing will be gained — nothing but more horrors– by shrieking hysterically and wishing for the good old days when people just went ahead and died. “It’s a braver, newer world suddenly,” says the blogger. “It’s moments like this that make me long for simpler days.”

I was at a cemetery yesterday. One large grave plot included one man, his first wife with a string of child’s headstones, and his second wife with her own string of dead children.

Those were simpler days.

Babies died, women died, over and over and over again, because the medical technology available was a bowl of hot water, a poultice, and a prayer. Things were simpler then, and children flickered in and out of life like stars, too tiny ever to send their light all the way to earth.

Was it simpler? Yes, it was. Was it better? No, it was not. Evil ebbs and flows. It adapts to whatever the current age can offer. There was evil, and carelessness, and the devaluation of human life back in the old days, and there is evil, carelessness, and the devaluation of human life now. An artificial womb may look scary and dystopian to us. For perspective, maybe browse baby coffins.

I won’t lie: I’m horrified when I look into the future (or even the present) and see that science is separating us more and more from our humanity. But I’m equally horrified when I see Catholics retreating into a sort of sentimental brutality that sighs heavily, dons a cloak of false nobility, and grandly chooses death for others over hard choices for us all.

 

Nanodiapers in a brave new world

Here’s a spot of light in the news this week: Huggies has just announced a new diaper designed for babies who weigh under two pounds.

Under two pounds.  Two pounds is how much a large loaf of bread weighs.

It’s not just that these babies are so tiny, and need tiny diapers, but they need to be curled up like little bean sprouts, and their poor little skin is terribly sensitive. Huggies quotes “an infant development specialist at Memorial Hermann Southwest Hospital in Houston, Texas” as saying the new tiny diapers “conformed to the baby’s bottom without gapping or limiting leg movement. The thinner fasteners and less material at the waist provided a good fit for baby while still protecting their fragile skin.”

I mention all this because it’s good to remember that this is still a very excellent century to be alive. It was not so long ago that a baby born young enough to need a “nano preemie diaper” would never have a chance to need a diaper at all. Now such babies often survive, and even thrive.

In the same week, the Vatican has released a new Charter for Health Care Workers (the last one was in 1995; and that’s the Vatican site, so you’ll want to put on your parchment-filtering goggles so you can read it). It’s a directive for those who, among other things, care for premature babies and other that would have died in other centuries — and also for human beings who, in any other century, would have been allowed to live, but now may not.

Catholic Culture.org reports:

The Charter provides encouragement and guidance for health-care workers in coping with three stages of human life: “generating, living, dying.” Regarding “generating,” the document affirms the Church’s teaching on the immorality of abortion and destructive embryo research. It calls for treating infertility problems only by natural methods, and without destroying unborn lives.

The “living” section includes articles on topics as diverse as anencephaly, ectopic pregnancy, embryo reduction, vaccines, regenerative medicine, and the treatment of rare diseases with “orphan drugs.” The section on “dying” stresses the need to respect the dignity of the person, providing care but not extraordinary or burdensome treatment for those who are terminally ill.

A strange and terrible and wonderful time to be alive. Terrible and wonderful at the same time. As fast as medical gains are made, we dream up ways to exploit them. And so the Church rolls up her sleeves and sets to, giving guidance on problems that simply didn’t exist fifty, thirty, or even ten years ago.

I want to be a Catholic like the Church is a Catholic: looking clearly at life as it is right now, and saying, “There is good and bad here. How shall I help?”  It is no good pretending everything is fine, but it is no good pretending everything is dreadful, either.

In the meantime: Two-pound babies and one-pound babies are surviving. Thanks be to God.

***

photo credit: Mrs. Jenny Ryan Preemie Diaper via photopin (license)

What the Catholic Church teaches about death with dignity

“Death with dignity” laws are both sensible and compassionate; religious prohibitions of suicide are both emotional and cruel.     

Too often, that’s how the narrative goes when we discuss end-of-life issues and the laws surrounding them. Secular folks claim that, when people of faith protest against legalized suicide and euthanasia, our arguments are based in emotion, passion, or even a sadistic appetite for pain and suffering.

On the contrary, the Catholic Church’s teachings are both consistent and compassionate.

In light of recent discussions of Supreme Court nominee Neil Gorsuch and his views on assisted suicide and euthanasia, and in light of the story of a Dutch doctor who directed family members to hold down a struggling old woman so he could carry out her “assisted suicide,” I’m sharing again this article from 2013. The research I did for it corrected many of my own misconceptions about what it means to be pro-life at the end of life.

***

“Technology runs amok without ethics,” says Tammy Ruiz, a Catholic nurse who provides end-of-life care for newborns. “Making sure ethics keeps up with technology is one of the major focuses of my world.”

How do Catholics like Ruiz honor the life and dignity of patients, without playing God—either by giving too much care, or not enough?

Cathy Adamkiewicz had to find that balance when she signed the papers to remove her four-month-old daughter from life support. The child’s bodily systems were failing, and she would not have survived the heart transplant she needed. She had been sedated and on a respirator for most of her life. Off the machines, Adamkiewicz says, “She died peacefully in my husband’s arms. It was a joyful day.”

“To be pro-life,” Adamkiewicz explains, “does not mean you have to extend life forever, push it, or give every type of treatment.”

Many believe that the Church teaches we must prolong human life by any means available, but this is not so. According to the Catechism of the Catholic ChurchDiscontinuing medical procedures that are burdensome, dangerous, extraordinary, or disproportionate to the expected outcome can be legitimate; it is the refusal of “over-zealous” treatment” (CCC, 2278).

Does this mean that the Church accepts euthanasia or physician-assisted suicide—that we may end a life to relieve suffering or because we think someone’s “quality of life” is too poor? No. The Catechism continues: “One does not will to cause death; one’s inability to impede it is merely accepted” (CCC, 2278).

Richard Doerflinger, associate director of Pro-Life Activities at the USCCB, explains that caregivers must ask, “What good can this treatment do for this person I love? What harm can it do to him or her? This is what Catholic theology calls ‘weighing the benefits and burdens of a treatment.’ If the benefit outweighs the burden, in your judgment, you should request the treatment; otherwise, it would be seen as morally optional.”

Palliative care is also legitimate, even if it may hasten death—as long as the goal is to alleviate suffering.

But how are we to judge when the burdens outweigh the benefits?

Some decisions are black and white: We must not do anything, or fail to do anything, with the goal of bringing about or hastening death. “An act or omission which, of itself or by intention, causes death in order to eliminate suffering constitutes a murder gravely contrary to the dignity of the human person and to the respect due to the living God, his Creator (CCC, 2277).

The dehydration death of Terry Schiavo in 2005 was murder, because Schiavo was not dying. Withdrawing food and water had the direct goal of killing her.

But if a man is dying of inoperable cancer and no longer wishes to eat or drink, or his body can no longer process nutrition, withdrawing food and water from him might be ethical and merciful. He is already moving toward death, and there is no reason to prolong his suffering.

Moral Obligations

Our moral obligations are not always obvious. Laura Malnight struggled with doubt and fear as she contemplated the future of her tiny newborn quadruplets. Two of them had pneumonia.

“It was horrible to watch them go through what they had to go through to live, being resuscitated over and over again,” Malnight says.

One baby was especially sick and had suffered brain damage. The doctors who had pushed her to do “selective reduction” while she was pregnant now urged her to stop trying to keep her son alive. “They said we were making a horrible mistake, and they painted a terrible picture of what his life would be like in an institution,” Malnight says.

Exhausted and overwhelmed, Malnight was not able to get a clear answer about the most ethical choice for her children.

Everyone told her, “The baby will declare himself,” signaling whether he’s meant to live or die. “But,” says Malnight, “my only experience with motherhood was with these babies, in their isolettes. The thing was, we would put our hands over our son and he would open his eyes, his breathing would calm.”

“We just kind of muddled through,” she says. Her quadruplets are now 13 years old, and her son, while blind and brain-damaged, is a delightful and irreplaceable child.

Doerflinger acknowledges Malnight’s struggle: “Often there is no one right or wrong answer, but just an answer you think is best for your loved one in this particular situation, taking into account that patient’s own perspective and his or her ability to tolerate the burdens of treatment.”

The key, says Cathy Adamkiewicz, is “not to put our human parameters on the purpose of a human life.”

When she got her infant daughter’s prognosis from the neurologist, she told him, “You look at her as a dying system. I see a human being. Her life has value, not because of how much she can offer, but there is value in her life.”

“Our value,” Cathy says, “is not in our doing, but in our being. Doerflinger agrees, and emphasizes that “every life is a gift. Particular treatments may be a burden; no one’s life should be dismissed as a burden.”

He says that human life is “a great good, worthy of respect. At the same time, it is not our ultimate good, which lies in our union with God and each other in eternity. We owe to all our loved ones the kind of care that fully respects their dignity as persons, without insisting on every possible means for prolonging life even if it may impose serious risks and burdens on a dying patient. Within these basic guidelines, there is a great deal of room for making personal decisions we think are best for those we love.”

Because of this latitude, a living will is not recommended for Catholics. Legal documents of this kind cannot take into account specific, unpredictable circumstances that may occur. Instead, Catholic ethicists recommend drawing up an advance directive with a durable power of attorney or healthcare proxy. A trusted spokesman is appointed to make medical decisions that adhere to Church teaching.

Caregivers should do their best to get as much information as possible from doctors and consult any priests, ethicists, or theologians available—and then to give over care to the doctors, praying that God will guide their hearts and hands.

Terri Duhon found relief in submitting to the guidance of the Church when a sudden stroke caused her mother to choke. Several delays left her on a ventilator, with no brain activity. My husband and I couldn’t stand the thought of taking her off those machines. We wanted there to be a chance,” she says. But as the night wore on, she says, “We reached a point where it was an affront to her dignity to keep her on the machines.”

Duhon’s words can resonate with caregivers who make the choice either to extend life or to allow it to go: “I felt thankful that even though all of my emotion was against it, I had solid footing from the Church’s moral teaching. At least I wasn’t making the decision on my own.”

Adamkiewicz agrees. “It’s so terrifying and frustrating in a hospital,” she remembers. “I can’t imagine going through it without having our faith as our touchstone during those moments of fear.”

 *********

End of life resources

Ethical and Religious Directives for Catholic Healthcare Services (from the USCCB)

Evangelium Vitae

Pope John Paul II, To the Congress on Life-Sustaining Treatments and Vegetative State, 20 March 2004 

NCBCenter.org provides samples of an advance directive with durable power of attorney or healthcare proxy.

This article was originally published in Catholic Digest in 2013.

What the Catholic Church teaches about care for the dying

“Death with dignity” laws are both sensible and compassionate; religious prohibitions of suicide are both emotional and cruel.

Too often, that’s how the narrative goes when we discuss end-of-life issues and the laws surrounding them. Secular folks claim that, when Catholics and others protest against legalized suicide and euthanasia, our arguments are based in emotion, passion, or even a sadistic appetite for pain and suffering.

On the contrary, the Catholic Church’s teachings are both consistent and compassionate.

In light of recent discussions of Supreme Court nominee Neil Gorsuch and his views on assisted suicide and euthanasia, and in light of the story of a Dutch doctor who directed family members to hold down a struggling old woman so he could carry out her “assisted suicide,” I’m sharing again this article from 2013. The research I did for it corrected many of my own misconceptions about what it means to be pro-life at the end of life.

 

***

“Technology runs amok without ethics,” says Tammy Ruiz, a Catholic nurse who provides end-of-life care for newborns. “Making sure ethics keeps up with technology is one of the major focuses of my world.”

How do Catholics like Ruiz honor the life and dignity of patients, without playing God—either by giving too much care, or not enough?

Cathy Adamkiewicz had to find that balance when she signed the papers to remove her four-month-old daughter from life support. The child’s bodily systems were failing, and she would not have survived the heart transplant she needed. She had been sedated and on a respirator for most of her life. Off the machines, Adamkiewicz says, “She died peacefully in my husband’s arms. It was a joyful day.”

“To be pro-life,” Adamkiewicz explains, “does not mean you have to extend life forever, push it, or give every type of treatment.”

Many believe that the Church teaches we must prolong human life by any means available, but this is not so. According to the Catechism of the Catholic ChurchDiscontinuing medical procedures that are burdensome, dangerous, extraordinary, or disproportionate to the expected outcome can be legitimate; it is the refusal of “over-zealous” treatment” (CCC, 2278).

Does this mean that the Church accepts euthanasia or physician-assisted suicide—that we may end a life to relieve suffering or because we think someone’s “quality of life” is too poor? No. The Catechism continues: “One does not will to cause death; one’s inability to impede it is merely accepted” (CCC, 2278).

Richard Doerflinger, associate director of Pro-Life Activities at the USCCB, explains that caregivers must ask, “What good can this treatment do for this person I love? What harm can it do to him or her? This is what Catholic theology calls ‘weighing the benefits and burdens of a treatment.’ If the benefit outweighs the burden, in your judgment, you should request the treatment; otherwise, it would be seen as morally optional.”

Palliative care is also legitimate, even if it may hasten death—as long as the goal is to alleviate suffering.

But how are we to judge when the burdens outweigh the benefits?

Some decisions are black and white: We must not do anything, or fail to do anything, with the goal of bringing about or hastening death. “An act or omission which, of itself or by intention, causes death in order to eliminate suffering constitutes a murder gravely contrary to the dignity of the human person and to the respect due to the living God, his Creator (CCC, 2277).

The dehydration death of Terry Schiavo in 2005 was murder, because Schiavo was not dying. Withdrawing food and water had the direct goal of killing her.

But if a man is dying of inoperable cancer and no longer wishes to eat or drink, or his body can no longer process nutrition, withdrawing food and water from him might be ethical and merciful. He is already moving toward death, and there is no reason to prolong his suffering.

Moral Obligations

Our moral obligations are not always obvious. Laura Malnight struggled with doubt and fear as she contemplated the future of her tiny newborn quadruplets. Two of them had pneumonia.

“It was horrible to watch them go through what they had to go through to live, being resuscitated over and over again,” Malnight says.

One baby was especially sick and had suffered brain damage. The doctors who had pushed her to do “selective reduction” while she was pregnant now urged her to stop trying to keep her son alive. “They said we were making a horrible mistake, and they painted a terrible picture of what his life would be like in an institution,” Malnight says.

Exhausted and overwhelmed, Malnight was not able to get a clear answer about the most ethical choice for her children.

Everyone told her, “The baby will declare himself,” signaling whether he’s meant to live or die. “But,” says Malnight, “my only experience with motherhood was with these babies, in their isolettes. The thing was, we would put our hands over our son and he would open his eyes, his breathing would calm.”

“We just kind of muddled through,” she says. Her quadruplets are now 13 years old, and her son, while blind and brain-damaged, is a delightful and irreplaceable child.

Doerflinger acknowledges Malnight’s struggle: “Often there is no one right or wrong answer, but just an answer you think is best for your loved one in this particular situation, taking into account that patient’s own perspective and his or her ability to tolerate the burdens of treatment.”

The key, says Cathy Adamkiewicz, is “not to put our human parameters on the purpose of a human life.”

When she got her infant daughter’s prognosis from the neurologist, she told him, “You look at her as a dying system. I see a human being. Her life has value, not because of how much she can offer, but there is value in her life.”

“Our value,” Cathy says, “is not in our doing, but in our being. Doerflinger agrees, and emphasizes that “every life is a gift. Particular treatments may be a burden; no one’s life should be dismissed as a burden.”

He says that human life is “a great good, worthy of respect. At the same time, it is not our ultimate good, which lies in our union with God and each other in eternity. We owe to all our loved ones the kind of care that fully respects their dignity as persons, without insisting on every possible means for prolonging life even if it may impose serious risks and burdens on a dying patient. Within these basic guidelines, there is a great deal of room for making personal decisions we think are best for those we love.”

Because of this latitude, a living will is not recommended for Catholics. Legal documents of this kind cannot take into account specific, unpredictable circumstances that may occur. Instead, Catholic ethicists recommend drawing up an advance directive with a durable power of attorney or healthcare proxy. A trusted spokesman is appointed to make medical decisions that adhere to Church teaching.

Caregivers should do their best to get as much information as possible from doctors and consult any priests, ethicists, or theologians available—and then to give over care to the doctors, praying that God will guide their hearts and hands.

Terri Duhon found relief in submitting to the guidance of the Church when a sudden stroke caused her mother to choke. Several delays left her on a ventilator, with no brain activity. My husband and I couldn’t stand the thought of taking her off those machines. We wanted there to be a chance,” she says. But as the night wore on, she says, “We reached a point where it was an affront to her dignity to keep her on the machines.”

Duhon’s words can resonate with caregivers who make the choice either to extend life or to allow it to go: “I felt thankful that even though all of my emotion was against it, I had solid footing from the Church’s moral teaching. At least I wasn’t making the decision on my own.”

Adamkiewicz agrees. “It’s so terrifying and frustrating in a hospital,” she remembers. “I can’t imagine going through it without having our faith as our touchstone during those moments of fear.”

 *********

End of life resources

 

Ethical and Religious Directives for Catholic Healthcare Services (from the USCCB)

Evangelium Vitae

Pope John Paul II, To the Congress on Life-Sustaining Treatments and Vegetative State, 20 March 2004 

NCBCenter.org provides samples of an advance directive with durable power of attorney or healthcare proxy.

This article was originally published in Catholic Digest in 2013.

An Ethically-Produced Shingles Vaccine?

vaccine elderly

Many pro-lifers still decline to use any vaccine that was not ethically derived, choosing instead to face the risk of contracting and spreading preventable, often fatal diseases.

Whatever is keeping Americans from taking full advantage of vaccines, this potential new shingles vaccine is a step in the right direction, and pro-lifers are rightly heartened by the possible advent of at least one ethically-derived vaccine. It’s a bit early to celebrate, though.

Read the rest at the Register.

 

Pro-life Even at the End of Life: What the Catholic Church Teaches about Care for the Dying

End_of_life_(2967585466)

The Catholic Church has a consistent, compassionate approach to end-of-life issues, but many Catholics don’t know what the Church actually teaches. As a result, doctors, hospice care workers, and the guardians of patients in distress are branded “murderers” even when they’re doing their best to care for the sick and dying in a loving, responsible, and ethical way. 

I wrote this article for Catholic Digest in 2013.  I’m reprinting it today in light of recent conversationg surrounding Baby Jake and the court’s decisions about his future medical care.

Pro-Life Even at the End of Life

“Technology runs amok without ethics,” says Tammy Ruiz, a Catholic nurse who provides end-of-life care for newborns. “Making sure ethics keeps up with technology is one of the major focuses of my world.”

How do Catholics like Ruiz honor the life and dignity of patients, without playing God—either by giving too much care, or not enough?

Cathy Adamkiewicz had to find that balance when she signed the papers to remove her four-month-old daughter from life support. The child’s bodily systems were failing, and she would not have survived the heart transplant she needed. She had been sedated and on a respirator for most of her life. Off the machines, Adamkiewicz says, “She died peacefully in my husband’s arms. It was a joyful day.”

“To be pro-life,” Adamkiewicz explains, “does not mean you have to extend life forever, push it, or give every type of treatment.”

Many believe that the Church teaches we must prolong human life by any means available, but this is not so. According to the Catechism of the Catholic ChurchDiscontinuing medical procedures that are burdensome, dangerous, extraordinary, or disproportionate to the expected outcome can be legitimate; it is the refusal of “over-zealous” treatment” (CCC, 2278).

Does this mean that the Church accepts euthanasia or physician-assisted suicide—that we may end a life to relieve suffering or because we think someone’s “quality of life” is too poor? No. The Catechism continues: “One does not will to cause death; one’s inability to impede it is merely accepted” (CCC, 2278).

Richard Doerflinger, associate director of Pro-Life Activities at the USCCB, explains that caregivers must ask, “What good can this treatment do for this person I love? What harm can it do to him or her? This is what Catholic theology calls ‘weighing the benefits and burdens of a treatment.’ If the benefit outweighs the burden, in your judgment, you should request the treatment; otherwise, it would be seen as morally optional.”

Palliative care is also legitimate, even if it may hasten death—as long as the goal is to alleviate suffering.

But how are we to judge when the burdens outweigh the benefits?

Some decisions are black and white: We must not do anything, or fail to do anything, with the goal of bringing about or hastening death. “An act or omission which, of itself or by intention, causes death in order to eliminate suffering constitutes a murder gravely contrary to the dignity of the human person and to the respect due to the living God, his Creator (CCC, 2277).

The dehydration death of Terry Schiavo in 2005 was murder, because Schiavo was not dying. Withdrawing food and water had the direct goal of killing her.

But if a man is dying of inoperable cancer and no longer wishes to eat or drink, or his body can no longer process nutrition, withdrawing food and water from him might be ethical and merciful. He is already moving toward death, and there is no reason to prolong his suffering.

Moral Obligations

Our moral obligations are not always obvious. Laura Malnight struggled with doubt and fear as she contemplated the future of her tiny newborn quadruplets. Two of them had pneumonia.

“It was horrible to watch them go through what they had to go through to live, being resuscitated over and over again,” Malnight says.

One baby was especially sick and had suffered brain damage. The doctors who had pushed her to do “selective reduction” while she was pregnant now urged her to stop trying to keep her son alive. “They said we were making a horrible mistake, and they painted a terrible picture of what his life would be like in an institution,” Malnight says.

Exhausted and overwhelmed, Malnight was not able to get a clear answer about the most ethical choice for her children.

Everyone told her, “The baby will declare himself,” signaling whether he’s meant to live or die. “But,” says Malnight, “my only experience with motherhood was with these babies, in their isolettes. The thing was, we would put our hands over our son and he would open his eyes, his breathing would calm.”

“We just kind of muddled through,” she says. Her quadruplets are now 13 years old, and her son, while blind and brain-damaged, is a delightful and irreplaceable child.

Doerflinger acknowledges Malnight’s struggle: “Often there is no one right or wrong answer, but just an answer you think is best for your loved one in this particular situation, taking into account that patient’s own perspective and his or her ability to tolerate the burdens of treatment.”

The key, says Cathy Adamkiewicz, is “not to put our human parameters on the purpose of a human life.”

When she got her infant daughter’s prognosis from the neurologist, she told him, “You look at her as a dying system. I see a human being. Her life has value, not because of how much she can offer, but there is value in her life.”

“Our value,” Cathy says, “is not in our doing, but in our being. Doerflinger agrees, and emphasizes that “every life is a gift. Particular treatments may be a burden; no one’s life should be dismissed as a burden.”

He says that human life is “a great good, worthy of respect. At the same time, it is not our ultimate good, which lies in our union with God and each other in eternity. We owe to all our loved ones the kind of care that fully respects their dignity as persons, without insisting on every possible means for prolonging life even if it may impose serious risks and burdens on a dying patient. Within these basic guidelines, there is a great deal of room for making personal decisions we think are best for those we love.”

Because of this latitude, a living will is not recommended for Catholics. Legal documents of this kind cannot take into account specific, unpredictable circumstances that may occur. Instead, Catholic ethicists recommend drawing up an advance directive with a durable power of attorney or healthcare proxy. A trusted spokesman is appointed to make medical decisions that adhere to Church teaching.

Caregivers should do their best to get as much information as possible from doctors and consult any priests, ethicists, or theologians available—and then to give over care to the doctors, praying that God will guide their hearts and hands.

Terri Duhon found relief in submitting to the guidance of the Church when a sudden stroke caused her mother to choke. Several delays left her on a ventilator, with no brain activity. My husband and I couldn’t stand the thought of taking her off those machines. We wanted there to be a chance,” she says. But as the night wore on, she says, “We reached a point where it was an affront to her dignity to keep her on the machines.”

Duhon’s words can resonate with caregivers who make the choice either to extend life or to allow it to go: “I felt thankful that even though all of my emotion was against it, I had solid footing from the Church’s moral teaching. At least I wasn’t making the decision on my own.”

Adamkiewicz agrees. “It’s so terrifying and frustrating in a hospital,” she remembers. “I can’t imagine going through it without having our faith as our touchstone during those moments of fear.”

 *********

End of life resources

 

Ethical and Religious Directives for Catholic Healthcare Services (from the USCCB)

Evangelium Vitae

Pope John Paul II, To the Congress on Life-Sustaining Treatments and Vegetative State, 20 March 2004 

NCBCenter.org provides samples of an advance directive with durable power of attorney or healthcare proxy.

This article was originally published in Catholic Digest in 2013.

Hey, who wants to talk about Dr. Deisher and vaccines and autism and fetal cells and statistics? Some more?

PIC man showing woman statistics chart

Not me! But other folks do, and ain’t other folks what make the world go round? Here are a few good reads for vaccine/austism/fetal cell/Deisher/statistical analysis die hards, following an odd exchange I had with Stacy Trasancos in the comment box of my Monday post, But what if we’re not scientists?

The folks at Rational Catholic have added an even more in-depth commentary on the statistical analysis in Dr. Deisher’s study with Looking a Little Closer at the Numbers

Joseph Moore of Yard Sale of the Mind offers Simcha Fisher’s Science Post: the Gift that Keeps On Giving!

And after Stacy Trasancos wrote this, to her credit she asked highly credentialed statistician Matt Briggs to evaluate Dr. Deisher’s study. You can read his opinion at Autism and Stem-Cell Derived Vaccines: Deisher’s New Paper.

So now you are all caught up! I find that I am sitting here slowly making my way through an unattended stick of butter as I type, so rather than go through and find tantalizing pull quotes for you from the links above, I’m going to get away from my computer for a bit. Byee!

Temporary womb transplants?

Wow – not sure what to think about this:

Nine women in Sweden have successfully received transplanted wombs donated from relatives and will soon try to become pregnant, the doctor in charge of the pioneering project has revealed.

The women were born without a uterus or had it removed because of cervical cancer. Most are in their 30s and are part of the first major experiment to test whether it’s possible to transplant wombs into women so they can give birth to their own children.

The intended procedure, as it stands now, is not ethical by Catholic standards:

The transplant operations did not connect the women’s uteruses to their fallopian tubes, so they are unable to get pregnant naturally. But all who received a womb have their own ovaries and can make eggs. Before the operation, they had some removed to create embryos through in-vitro fertilization. The embryos were then frozen and doctors plan to transfer them into the new wombs, allowing the women to carry their own biological children.

But what if doctors eventually learn how to connect a transplanted uterus to fallopian tubes, to permit for natural conception?  Could the procedure then be ethical?  It’s not surrogacy.

At first I thought, “Well, a uterus is just an organ, and other organs can be transplanted ethically.”  But it’s not really just another organ, because its purpose is to support another human being; whereas if you undergo a risky heart transplant, it’s only your own life you have to consider.  So far, no one with a transplanted womb has brought a baby to term. Is it ethical to get pregnant when you have reason to believe the baby may not survive? If so, is that different from a woman with the womb she was born with, knowingly getting pregnant even if she’s had several miscarriages before?

Also, who could ethically donate a womb, according to Catholic bioethics?  I’m pretty sure it would not be ethical for a married woman of childbearing age to donate her womb, even if she considered herself “done” having children.  What about someone who made a vow of celibacy? A purely medical question:  would a post-menopausal woman’s womb even be useful to a young woman with younger eggs who was trying to conceive?

Does it make a difference that these are intended to be temporary transplants?  The idea is that women try to have as many as two children, and then the uterus is removed so they can stop taking anti-rejection drugs, which have bad side effects.

I don’t want to automatically shy away from science. Just because something sounds creepy doesn’t mean it’s wrong.  But this is an especially complicated situation.  What do you think?