A different NaPro story: Leah Libresco Sargeant speaks on loss and kindness

Last week, during Infertility Awareness Week, I published an interview with a woman who was served very poorly by her NaPro doctor. He failed her medically and caused her unnecessary physical and psychological harm. 
 
Leah Libresco Sargeant had a very different experience. Sargeant, 31, was married in 2016 and has one living child, Beatrice, who is 15 months old. Before Beatrice was born, Sargeant lost six babies. 
 

Those children are named Robin, Ariel, Blaise, Casey, Camillian, and Luca. Her third pregnancy was a possible ectopic, after which she began seeing a NaPro doctor. She then had a very early loss, sometimes referred to clinically as a ‘chemical pregnancy,’ and two more ectopic pregnancies before conceiving and carrying Beatrice to term. 

These are not dueling interviews, and they are not mirror images of each other. I wanted to share both women’s stories to give the conversation around NaPro more depth and nuance, because it’s so often presented in Catholic circles as a miracle cure, and entirely different from what mainstream fertility doctors can offer. Sometimes it is, and sometimes it  isn’t.

As Sargeant says,”Both stories are true. It’s a reason for people to hold Catholic doctors to a high standard of charity, as well as ethics. It’s not an unreachable standard.” 
 
Here is our conversation, which has been edited for length and clarity:
 
A lot of people lose their first babies. When did you become aware that what you were dealing with was out of the ordinary?
 
 With our first baby, Robin. I didn’t care if it was out of the ordinary or not. People would say things like, “Your odds are good if you try again,” but who cares? Our baby just died. Nobody would say that if your baby got hit by a car. For each of our pregnancies, we focused on the risk to this baby, rather than thinking of it on some abstract level. 
 
After Blaise [the third loss] it was only partly that we were looking for a NaPro doctor. We were looking for a doctor who was a kind person, which wasn’t how we felt about the two doctors we had seen before. It felt like they didn’t see our babies as babies. They barely saw us as people.
 

When we came in for the last ultrasound, we suspected we had lost the baby by that point, and right before [the doctor] came into the room, I heard her say, “Okay, so there’s nothing there?” And they were brusque with us when we were crying in the waiting room. I’m sure it’s uncomfortable for people to see that, but what did they think was going to happen? It felt as though they had never delivered the news of a miscarriage before. You’re surprised by this? 

Even if it didn’t make any improvement in our medical treatment, [having a Catholic doctor] would mean someone who would take our losses seriously. 

How did you go about finding such a person?

We were in New York City, and we were in a Frassati Group for young married and engaged couples, and they said Dr. Nolte and the Gianna Center was really good. 
 
She took a very exhaustive NaPro history with a dozen blood tests, testing every possible hormone. She also asked about all our miscarriages, and when she took notes, she wrote down the babies’ names in the charts. I spoke to her recently, and she wanted to make sure she had accurately transferred all their names. 
 

So it sounds like this is one of those geographical things. Elizabeth had to drive four hours to get to a NaPro doctor, but you had a choice. 

 

Yes,  just walked across town. It was a 30 minute walk, and there was a park nearby. 
 
How did you first hear of NaPro? 
 
I had heard about in general. I took it with a grain of salt, the same as with people who say NFP is the best possible thing for your marriage, and whatever problem you have, NFP will solve it. 
 

It’s hard to make really strong promises, because women’s health is so under-researched. It’s important not to overpromise, not because the science is unsound, but because women’s health is always under-researched. Progesterone may be helpful. Depending on [your underlying condition] ,some studies have found yes, some have found no. It depends on what the nature of the fertility problem is. It’s certainly plausible it could save the life of some babies, but it’s not a given.

We talked about the side effects of medications, and whether it’s worth the chance to try it. I didn’t notice any side effects of taking progesterone, so there was very little down side of taking it. It might help, and it wasn’t difficult to take it. She said we could always come back and discuss how it was progressing. 

The thing that was most difficult was that it was a lot of different pills to take. It was depressing taking a little pill canister around, taking things at every meal, and having that be a reminder of how hard this was for us. 
 
Did you ever sit down and discuss what the parameters would be, how far you would go, what you would try? 
 
It would  have been something we would have evaluated if we had been [pursuing treatment] over a longer period of time. But we did keep getting pregnant. It was, “Is this baby going to make it?” It wasn’t this long, undifferentiated slog. 
 
You mentioned in an interview that, pre-conversion, you found some appeal in the gnostic idea that the “real you” is housed in the body; and in another essay that NFP did some work to heal that. I wonder if having struggles with your body not “functioning” right awoke that struggle at all. 
 
It’s been a long and continuing conversion of heart. There’s a difference between teaching women that their cycle has a structure, versus teaching as though there is no cycle, there’s just periods, and it’s a problem, and here’s how to manage it. That bodies are basically bad, but you can stay ahead of them if you work hard.  [Although, with some situations with NFP,] it can feel like your body is sending you signals from a distance, and it’s foggy. It’s not as though NFP is a magic bullet. 
 
A lot of women struggling with fertility problems talk about feeling like their bodies are broken, or that they betrayed them. 
 
I didn’t feel that way. Although a lot of medical terminology pushes in that direction. “Miscarried” sounds like you were carrying the baby, but you screwed up. “Losing the baby” makes you feel like, “Did I take my eye off the baby? Somehow I lost him.” A lot of language circles around blame. I didn’t have this [particular] problem, but “incompetent cervix” [is another example]. It’s not like you personally went cervix shopping and picked out one with a bad expiration date. 
 
A lot of medical language ticks me off. It sounds like it’s a woman’s fault. [My doctor wrote on my chart] “early loss,” rather than “chemical pregnancy.” Part of what happened was I felt like my body was doing the best job it could.
 

It was personally comforting for me [that I didn’t have to have a DNC]. I got take care of my baby till the end. It could be in my family without involving aggressive medical attention. 

With Camillian, it was an ectopic pregnancy. The blood tests started getting bad, and when we went in for the ultrasound, we were steeling ourselves to hear that the baby had died. But we got told the baby was in the wrong spot and had probably already died, based on the lack of heartbeat and how far along we should be. That really changed things. We were in the doctor’s office in New York, and they said, “You need to go to the hospital.” We took a train to New Jersey [so as to avoid] a surgeon who had been unkind to us. 
 
It was one thing to lose the baby, and for the baby to leave on their own time, but the idea that they were going to take the baby really upset me. The sense of peace I had with the other babies, I couldn’t feel with Camillian. It didn’t feel like it was happening on God’s time table or on the baby’s time table. 
 
Dr. Beiter had just met us. He hadn’t know us before. But he also stopped and talked through all our options. It was a Catholic hospital. Because the baby had already died, we had more options than is sometimes the case. We wanted to know how can we take care of the baby, even if the baby has died?
 

We didn’t like methotrexate very much as an idea. It would have been licit, but I didn’t like the idea of dissolving the baby. You have to wait longer, and it doesn’t always work. 

[The doctor said,] “You could avoid surgery; isn’t that better? You can go home today, and possibly just be done.” We talked it through, and he definitely had a preference for the drug, but he talked through what we preferred. Both options were morally fine and medically effective, and we made the call, and he took good care of us. 

Surgery is a harder recovery. It was locking in a harder recovery, but we wouldn’t expect to go back for another treatment. [With methotrexate, the symptoms of the drug can be similar to those of a tubal rupture, so you may have to go back to the ER.] I just wanted to go home and be done with everything, even if I’m recovering from abdominal surgery.  
 

That’s a tough thing with not just fertility medicine, but with medicine generally. Sometimes things are black and white, but sometimes there are different degrees of benefit and side effects, and there isn’t a single right decision. 

Did you ever receive any specific medical treatment from NaPro doctors that a mainstream fertility doctor would never have offered?

 

It’s hard to know for sure. Some mainstream doctors won’t consider progesterone at all, but my original doctor tested and had me supplement. There were tests that a doctor might have done later that our NaPro doctor didn’t need to wait for many many losses to do. None of them came through, but if I’d had a clotting disorder, I would have been very grateful for her being up to check.

The big (evidence not fully in) treatments we had were metformin for PCOS, and antibiotics for endometritis (which is different from endometriosis). Both of which, from my review of the literature, don’t have enough evidence behind them to make them an obvious right choice. But they have plausible mechanisms of action and (for me) mild to no side effects.

Did you ever have to deal with Catholics judging you for family size or for not having a honeymoon baby? 
 
We’ve been pretty open about our losses. Anyone who knew us enough to ask would know. Sometimes strangers will see Beatrice and say, “Is she your first?” I usually say “She’s our first to make it to birth.” Just because it’s true. 
 
Despite your good experience with Catholic doctors, is there anything you would like to see changed about the culture around NaPro or the conversation around Catholic fertility issues in general?
 

It’s good to remember that there’s not necessarily anything there to be fixed. [Sometimes people speak] in terms of something secretly wrong with you, and NaPro can fix it. We still don’t know for sure. We really don’t know if there was an underlying problem, or if we were just unlucky. 

If you feel like every person’s story ends by finding and fixing a problem, you can get emotionally blackmailed, by yourself, even. “I must have a really secret, obscure problem!” I saw that a bit in the miscarriage support group I was in. For the most part, it was really helpful, but [people would go to extreme lengths like] really aggressive elimination diets. I think people do that because they’ve tried everything, and it hasn’t happened, so they have to look harder for what’s wrong. 

God does make people who don’t have children, because that’s His really exhausting will for them, and not because His will is that they find and fix anything. It’s not comfortable, but it is true. That means people who do fertility care have to talk about the theology of suffering, not just aspirational fixing. 
 

One thing that helped me is that I have a friend who’s a Dominican sister who cares for people who are fatally ill with cancer. That’s their charism: They care for indigent people who cancer who wouldn’t otherwise have anyone to care for them. Not to cure them, but to care for them. That’s what my job was as a mother. 

Can you say more about that?
 
Some moms get to take care of their babies for the mom’s whole life. That’s not what I got to do. Instead, I got to take care of them for their whole lives. 

To care for them without the hope of curing them: That could be my work as a mother. 

Hopefully it’s because He trusts me with them. “I’m going to give you this baby who’s going to die. I’m entrusting you to love this baby in the way that baby needs to be loved, not the way you want to love that baby.”
 
And I worried, what if I get really good at this and God only wants me to do that? 
 
Is there anything we didn’t cover that you’d like people to know about your experience, or about infertility in general?
 
Sometimes people weren’t sure what to say to us. Trying to get us not to be sad is a lousy approach, but a common one. They didn’t say “Don’t be sad” out loud, but that is what they were saying quietly. If you could say quietly “Don’t be sad” in front of what you’re going to say, don’t say it. It’s better if you could say “I’m sad, too” quietly. 
 
What I wanted to hear was, “I’m sorry I won’t get to meet your baby. I would have liked to meet your baby.” 
 
 
***
 
Leah Libresco Sargeant is the author of two books, Arriving At Amen and Building the Benedict Option, and she runs a Substack called Other Feminisms: Creating a culture that values interdependence over autonomy
 

Not lost forever: On miscarriage, grief, and hope

In the movie Gladiator (2000), the victorious but homesick general Maximus carries with him tiny, crude statues of his beloved wife and son. They are a reminder of home, but he also prays to them and for them, tenderly cradling the figures in his hand as he endures the pain of separation.

The figures become even more precious to him when he discovers that his wife and son are dead — tortured and murdered as political revenge.

Some Romans believed that the spirits of the dead were literally embodied in the figures, making them so much more than keepsakes. After he dies, his friend buries the statuettes in the sand of the Colosseum. We see brief, otherworldly scenes of Maximus returning home, of the three of them rushing together again.

I thought of those little figures as I read ‘The Japanese Art of Grieving a Miscarriage’ in the New York Times. The author, Angela Elson, says:

According to Buddhist belief, a baby who is never born can’t go to heaven, having never had the opportunity to accumulate good karma. But Jizo, a sort of patron saint of foetal demise, can smuggle these half-baked souls to paradise in his pockets. He also delivers the toys and snacks we saw being left at his feet on Mount Koya. Jizo is the UPS guy of the afterlife.

Elson bought a Japanese Jizo figurine for herself when she had a miscarriage. She says:

A miscarriage at 10 weeks produces no body, so there would be no funeral. “What do we even do?” I asked the doctor. She wrote me a prescription for Percocet: “Go home and sleep.”

We went home. I didn’t sleep. I spent a week throwing myself around the house … I was itchy with sadness. I picked at my cuticles and tore out my hair. I had all this sorrow and no one to give it to, and Brady couldn’t take it off me because his hands were already full of his own mourning. We knew miscarriage was common. But why wasn’t there anything people did when it happened?

So they bought a Jizo. She carried him around for awhile, kissed him, spent time crocheting a hat and jacket for the figurine. “It was nice for us to have something to do, a project to finish in lieu of the baby I failed to complete,” she says.

Oh, Lord, how I understand.

When I lost our own very young baby a few years ago around this season, it was so terribly hard to have nothing to do. No birth, no ceremony, no body to wash, anoint, and clothe, no grave to dig. We could pray and cry and rest, but it was so hard. We want to have our hands on something. We want to know for sure that the world acknowledges: Yes, the child was here. Yes, the child was real.

I didn’t know it at the time, but my dear friend Kate had felted a beautiful little dog for me. Just a few weeks before the miscarriage, our puppy Shane got overexcited by the snow falling, and he went and ran in the road, and he was crushed by a speeding car that didn’t even slow down. My husband and son retrieved the dying dog and brought him to the vet, where they gently put him down, then burned his body and sealed the ashes in a carved box.

The felted dog that Kate made is perfect, a brilliant, lively bit of work. But before she could send it to me in remembrance, my baby died, too – and she knew how terrible it would be to acknowledge the loss of a pet, but not the loss of a child. And so Kate’s daughter made a felt baby for me, sweetly embroidered and cuddled in a little hand-sewn pouch. They sent them both along, the puppy and the baby, with sympathies and assurances of prayers.

It was so good to have. So good. Even when looking at it made me cry, it was so much better than the pain of looking for my lost baby and finding nothing.

After a year or so, I thought we might use my little felt baby as a Baby Jesus in our nativity scene. I took it out, but then hastily put the little one back again. It was still too raw; and besides, this baby wasn’t Jesus. This baby was someone else, with a name and a human soul, a mother and a father and siblings. Hell, for six weeks, the baby was even sort of the owner of a foolish puppy named Shane.

My little felt baby wasn’t just any generic baby figure, but a specific baby, my baby. So back into the pouch the little one went. Back to the work of simply quietly existing, eyes closed, so that I wasn’t empty-handed. This baby does this job very well.

I forget it is there, most times. I keep it on the windowsill in the kitchen, where it gathers dust along with other little keepsakes, statues, and trinkets people have given me. But I went to check in on it one day, and couldn’t find it, and the panic almost knocked me off my feet. (I had moved it to the other side of the windowsill last time I cleaned. Oops!)

Does it really matter what happens to my felt baby? Not really. Certainly not spiritually, eternally speaking. We are not ancient Romans, superstitiously locating dead spirits in wooden figurines; and we are not Buddhists, clinging to a heartbreakingly vague hope of our children sneaking into blissed-out extinction.

As Catholics, we know that all the bodies of the dead will be resurrected and transformed when Jesus comes back. We have reason to hope that even those little, innocent ones who never had eyes to see the light of day or the waters of baptism will be welcomed into heaven as well, not smuggled in the pockets of a low-ranking god, but recognized and called by name back home by their Father who made them.

Still, we are human. It is not wrong to look for physical reminders of abstract truths. Doctors and nurses, be gentle with women who have lost a child, even one too small to bury. Husbands, be patient, even if you don’t understand the depth of grief. Priests, take the time to acknowledge what happened, and do not be cavalier when answering spiritual questions or inquiries. Friends of a grieving mother, make it clear that you know the child she lost was a real child, irreplaceable, unlike any other.

Even as Catholics, we are one and the same with the fictional Maximus, because it gives us strength and hope to be able to touch and hold something connected to our dead. God made us with five senses, with hearts that reach out and seek comfort from earthly things, because these senses and these hearts can help remind us of what is true: That our lost children aren’t truly lost. They were really here, and they haven’t vanished forever. God willing, we will see them again.

***

Rebecca Jemison makes polymer clay baby loss memorials for free or donation. You can contact her at facebook.com/beccajemisoncreates.

This article was originally published in The Catholic Weekly in January of 2017
 
Image by Free-Photos from Pixabay

Handmade veil giveaway in honor of the Elizabeth Ministry Rosebud Program

Thinking of veiling for Lent? A generous reader has offered to donate a completely gorgeous hand-made veil for free, just because she likes doing it.

Here is a photo of one veil that you could win (blocked out on foam so you can see the amazing detail):

Isn’t that lovely? So delicate and graceful. Here’s a view of the full veil:

OR, she says she is willing to make one to your specs, in a custom color, size, and even design!

If you win and you’d like a custom-made veil, I’ll put you in touch with the donor, and you can work out details. She says it will take less than a week to get one ready to ship, as long as the color thread you choose is readily available where she lives.

Usually, when I offer a donated prize, the sponsor has a business to highlight. In this case, the donor would like to remain anonymous, and would like to draw your attention to the Rosebud Program of Elizabeth Ministry.

Elizabeth Ministry International offers a wide variety of programs and support, including through parishes and online, “designed to offer hope and healing on issues related to childbearing, sexuality, and relationships.”

The Rosebud Program “helps a church identify, pray for, and support those who are pregnant, celebrating birth or adoption, grieving miscarriage, stillbirth, abortion, infant or child death, or wanting to become pregnant or adopt.”

The donor would like to encourage those whose parishes don’t yet have a chapter to consider starting one, especially if there are members who can provide support for families experiencing miscarriage, stillbirth, or infant or child loss. A worthy cause, indeed. No one should suffer through these things alone. Sometimes people want to help, but don’t know how; and sometimes people need help, but don’t know how to ask.

***

To enter to win the veil, please use the Rafflecopter form, which you will find at the bottom of this post. Or maybe you’ll find a dumb-looking link that says “a Rafflecopter giveaway,” and you’ll just want to click on that.

There are several ways to enter the contest, but you must use the Rafflecopter form to be entered. 

Note to subscribers: One of the options is “subscribe to this blog.” Unfortunately, when I changed hosts, I lost all my email subscribers! I’m so sorry. If you subscribed anytime before last week, you will need to re-subscribe (and you’ll also get an entry into the contest, if you choose that option in the Rafflecopter form!). If you want to re-subscribe without being entered into the contest, simply re-subscribe via the blog and don’t use the Rafflecopter form.

Good luck! And thanks again to our generous and talented donor. The contest ends Saturday the 25th at midnight, and I’ll announce the winner as soon as possible after that.

a Rafflecopter giveaway

Not lost forever: Miscarriage, grief, and hope

felt-baby

We have reason to hope that even those little, innocent ones who never had eyes to see the light of day or the waters of baptism will be welcomed into heaven as well, not smuggled in the pockets of a low-ranking god, but recognised and called by name back home by their Father who made them.

Still, we are human. It is not wrong to look for physical reminders of abstract truths.

Read the rest of my latest for the Catholic Weekly.

New Women’s Wellness and Fertility Center in NH includes NaPro surgeon (and they’re hiring!)

I keep forgetting to tell you! There’s a new women’s wellness and fertility center opening in Manchester, NH, right inside Catholic Medical Center. They offer standard OB/GYN services  and well woman exams, and their new doctor, Dr. Sarah Bascle, is a surgeon who is trained in NaProTechnology.

As you may know, NaPro is not only ethically sound for Catholics, but it often has a high rate of success treating women suffering infertility, repeat miscarriages, endometriosis, PCOS, and other fertility issues, bringing healing where standard medical procedures fail. NaPro isn’t magic, but it’s real medicine, not woo, and it can be life-changing.

The Women’s Wellness & Fertility Center of New England opens in winter of 2017, and they are now pre-registering patients. Check out their webiste here, or call 603.314.7595.

They are also still hiring for a few positions, including an experienced Certified Nurse Midwife. Here’s some more info about that.

Best of luck to them! Many couples will travel for hundreds of miles to work with a NaPRO-trained doctor, so I’m thrilled to finally have one in New Hampshire.

 

I have a job for you, baby.

Not the little guy who just kicked me for the first time, that I could feel, just yesterday (yay!). I mean the other one, the one I lost. I wrote about how hard it was not to have a body to bury. You want to be able to take care of your children with your own hands, but I couldn’t do that, and it hurt.

Now, as the months have gone by and the pain of loss has receded, I still find myself bewildered about what to do with the baby’s soul.

When I found out I was pregnant last time, I prayed for the baby’s protection constantly, and turned him over to God. So I have a strong hope that, whenever it was that he left us, he was already baptized through our desire and intention to do so, and he went straight into the arms of his loving Papa in heaven. This is a good thing! I am not worried.  I love him, but God loves him more.

But, what to do when I pray for my all children, one by one? I was never sure when I got to this child. It didn’t feel right to pray for him. Even though I know no prayer is wasted, it seemed like asking for something that was already given.

And I know that many parents pray to their lost unborn babies, and that seemed reasonable, but felt odd, too. Probably this shows that I have a poor understanding of the saints in heaven, but praying to him felt like turning him into a spiritual being, which made him foreign, elevated beyond the family, not really our kid; and at the same time, it felt like too much to ask of such a little guy. I’m not going to tell my five-year-old when Daddy is having a hard time at work or Mama is worried about school; so why would I spill the beans to a seven-week-old fetus, even if he is enjoying the Beatific Vision? I know, I’m over thinking it, but it just felt weird!

But yesterday, it came to me: Baby, you pray for the new baby. You two hold hands and be good to each other. Take care of each other while Mama is taking care of the rest of them. Aha! Everybody needs a job. We are at our best when we know what we are here for.

A long Holy Saturday

Last night, I was cold and couldn’t sleep, so I snuggled up against my husband, who is always warm. When I’m pregnant, I like to press my belly against him so that we can all be warm all together, me and him and the baby.  “Here you go, little guy.  This is your daddy.  You will like him.”  Then, last night, I remembered that there is no baby.

There is no wild anguish here. I’m just tired, and bewildered.  I was so busy for those seven weeks, I sometimes forgot I was even pregnant, even though we wanted, tried for a baby. I hadn’t gotten around to even looking up what the little one was up to, week to week.  But I worked deliberately to make him real, when I remembered he was real:  I asked God to bless him.  I thanked God for him. I talked to him, and gave him a little happy pat when I remembered he was there.

Here is the thing that really hurts. I never saw the baby. I don’t know where he went.  I lost track of his body as I bled, and now he is gone.  Those are the worst nightmares:  the wave comes, the darkness falls, the crowd sweeps by, and your child is gone.  Where did he go?  Why didn’t I hold on tighter?  My husband would have gone and dug up the frozen ground to bury the body, but there is nothing to bury.  He has been washed away, and I don’t even know when.  Maybe he died weeks ago, when he was too little to be seen.  Maybe I was happily patting someone who was already gone.

It wouldn’t change anything if I could have buried him. But I wish I could have done it.

I’m trying to hear the voice of the angel — the one who stands waiting outside the tomb to explain the situation, so that when you go to take care of the body and find it gone, you will know that there haven’t been wild animals or grave robbers or some trickery or indignity.  You haven’t lost the body; the body has life.  He is not here, but he is not gone.  Don’t worry!  This is a good thing.  You cannot have his body, but you have not lost him.

I’m in a long Holy Saturday.  A bewildering time.  God promised joy, He promised resurrection, but in the mean time, what are we supposed to do?  It is hard when the ones we love hide from us.  They don’t need our care.

I want the baby to have eternal life.  And I want him back.